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Wednesday, September 29, 2010

I should have known about my celiac sooner

Really they should have diagnosed me sooner. As a baby they said I was lactose intolerant so they put me on a soy formula. It contained gluten, I still got sick. My mom switched me to goat's milk which I stayed on until I was well into grade school. Seriously I was they only kid for a long time at my tiny Catholic school that couldn't have milk. I was still having stomach problems but wouldn't complain because I hated the doctor and only said something when I didn't want to go to school. Then my grandma (I think it was her) forgot and gave me milk and ice cream. It totally didn't bother me at all. They decided I grew out of it.
I continued with having stomach issues but at this point it was normal for me and I thought everyone did.
My junior year of high school I was diagnosed with PCOS, poly-cystic ovary syndrome, and told that was the reason for the pain.
The pain continued. Fast forward to fall 2008, I started to notice some other symptoms weren't as normal as I thought. Thanks to having premed/ med friends and webmd.  I went to my doctor and demanded all kinds of testing. I wanted my thyroid tested, screened for diabetes, a celiac test, and a few others. He took all those tests and then put my on an elimination diet and had me call every time I eliminated something else. The second week was gluten. I didn't know what gluten was. I searched it out. I eliminated it and felt tons better. Got the test results back I had the celiac gene.
Something should have been done way back in 1984, when I had the formula issues.
I'm still a bit angry about it, but  it can't be changed now. Now I know what it is and how to fix it.
Here is a company that really helped me first get on the gluten free track:
http://udisglutenfree.com/

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